Information for Patient Partners
Patient Partners have a significant role in patient-oriented research. Currently ALL projects that are eligible to access data using the HRDP-SK must be patient-oriented research and therefore must include Patient Partners on the research team.
Patient Partners are not direct users of the HRDP-SK, as the platform is intended for individuals who employ a primary role in data analytics. The data included in the HRDP-SK is available in a format that requires specialized training in data software, such as SAS and R; software that supports statistical analysis and data visualization. The legislation that governs data does not allow access to the public or Patient Partners.
Patient Partners do, however, take on a key role in guiding what data their research team should access from the HRDP-SK and how it should be used. Thus, we support Patient Partners to actively participate in:
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Completing the HRDP-SK Data training programs
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Co-establishing what data should be pulled from the databases to support the research questions
- Participating in reviews of the data outputs that are pulled from HRDP-SK and supporting the team with analysis